(Editor) Ilana Jacqueline is the Managing Editor of The RARE Daily at Global Genes. She assists the patient community… See all of Ilana Jacqueline's Posts Global Genes Comments
Grae Kitonyi says: April 3, 2015 at 11:04 pm Grace Kitonyi – Hematologist, University of Nairobi at the Kenyatta National and Referral Hospital. Thank you Charles for so accurately narrating the plight of patients living with Fanconi anaemia (FA) in Kenya and for tireless striving to support them. Let me also acknowledge Ralf Dietrich and the German Fanconi Anemia Research Fund. Through yours sacrificial support about 10 children with Fanconi’s anaemia have had access to oxymetholone so far. About half have had very good response and do not require frequent hospitalizations for blood transfusions. This Easter the children are at home with family where as before they might have spent Easter in Hospital with their families getting transfusions. Bone marrow transplantation would improve and prolong the lives of patients with FA further. This mode of therapy is not yet available in Kenya because the capacity to provide it is lacking.